A new diagnosis can feel overwhelming.
We can help you understand the condition, connect with the right specialists, and find support from other families.
ACTA2 mutations can lead to a range of conditions affecting smooth muscle function across the body, including Multisystemic Smooth Muscle Dysfunction Syndrome (MSMDS) and other vascular disorders.
Understanding how these conditions develop and affect different systems is key to improving care and outcomes.
Access clinical resources, guidelines, and reference materials related to ACTA2 and MSMDS.
The MSMDS Patient Registry is a secure global platform hosted by Sanford CoRDS designed to improve understanding of the condition and support the development of future treatments.
Open to all MSMDS patients (ACTA2, MYH11 and related conditions)
Secure and confidential
Available in multiple languages
Family Circle is a private monthly online meeting for families affected by ACTA2 and MSMDS.
It is a safe space to connect, share experiences, and support one another.
A RARE DISEASE STRIVING FOR BIG RESULTS
CONACT US:
EMAIL:
msmds@acta2alliance.org
PHONE NUMBER:
(719) 963-9667
MAILING ADDRESS:
ACTA2 Alliance
45 South Road,
Bedford, MA 01730
*This content is not intended as a substitute for professional medical advice, diagnosis, or treatment. Should you require medical advice, please contact a qualified medical professional who is familiar with Multisystemic Smooth Muscle Dysfunction Syndrome.
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